Our first couple days in NY have been quite eventful! Julia got her shot the morning we arrived, Isaac did his MRI and my mom came here from Michigan to help me out. It was a long day at the hospital and by the time we got the Ronald, we had barely settled into our rooms before we started smelling a pretty bad burning smell and smoke starting filling our hallway, so we decided to take the stairs to go down to the first floor. Before we knew it everyone was being evacuated and there was a crazy amount of smoke coming from the top of the building. Within minutes tons of fire trucks and several ambulance had arrived. Wow talk about a scary experience, but thankfully everyone was ok. A couple neighborhood restaurants offered to feed all of us for free. How nice is it that they have so much community support?! Yesterday, Julia had scans and her bone marrow biopsies done. We don’t have the final results yet. Hopefully I can update you later today or tomorrow.
So Isaac was on the schedule for surgery this morning… but they didn’t end up taking him in until almost 3:30pm! The famous Dr. Laquaglia will be removing a 2cm mass that was found on his thyroid during a routine follow up visit at our local hospital. Isaac has had no other symptoms since they found this mass a few months ago. We are hoping and praying that it’s benign but we obviously don’t know until they send it to pathology after they operate. A biopsy was done at our local hospital but it wasn’t enough information to know whether it was benign or malignant so we are doing surgery to take the whole thing out.
We are very blessed to have Isaac under the care of one of the best pediatric surgeons in the world. They don’t think this is related to his history of neuroblastoma, but they can’t rule anything out yet. So they will be doing some genetic testing on the tumor.
Isaac was diagnosed over 13 years ago with stage 4 neuroblastoma and he still gets followed up at our local hospital from multiple departments including cardiology, pulmonary, oncology, and endocrinology. The thing that most people don’t realize is … if you’re lucky enough to beat childhood cancer, then you’re most likely going to be dealing with all kinds of side effects from the harsh treatments for the rest of your life! One of them being an increased risk of another type of cancer. So when people ask questions like “so when is she (Julia) gonna be done?”, I honestly don’t have an answer and really the answer is we’re never really done! If we’re done with treatment because we have survived the cancer, then there’s always a fear of it coming back or we are constantly being followed up to check for side effects from the treatment. Isaac survived cancer over 12 years ago and only God knows what kind of side effects he’s going to have to deal with when he’s an adult. He’s only a teenager and he’s been through so much already. He has a whole life to live! That’s the problem with these harsh, toxic treatments that they’re giving our young and precious children. They are willing to do anything to kill the cancer, but at what cost? What kind of quality of life are these kids going to have when they still have 60+ years to live?!
This is why I’m so passionate about preventative health and natural medicine. Healthcare shouldn’t start when you’re sick or when things are so bad that you need to take extreme measures to restore your body back to health. How we take care of our bodies every day plays a huge factor in how healthy we are… the food we eat, our emotional well being, sleep, stress, our whole lifestyle. But unfortunately we have to do our own research and be our own advocate because the government definitely does not have your best interest at heart. Even doctors, as much as I am so grateful for so many of them, are limited with their knowledge of nutrition and natural healing. They are only taught to treat the symptoms not the root of the problem. And they’re taught to treat that problem with drugs that have numerous side effects. I have so much respect for these doctors and all their hard work to find a cure for this disease, but there are other options besides chemo and toxic drugs. And actually it’s so good to see some hospitals and doctors start integrating natural therapies into their practice and being open to learn more about other options. But It’s so important to do your own research and learn how to support your immune system, especially if we are dealing with a serious illness.
I’ve been writing this update on and off throughout the day. It’s evening now and Isaac is out of surgery and resting. Thankfully everything went well and hopefully if all goes well, he can be released from the hospital tomorrow.
I can’t thank you enough for all your prayers and thoughtful messages.
To Jesus through Mary,